You decide, and you can change your mind
Nothing is collected or shared without your explicit consent, and that consent is revocable. Withdrawing stops future use of your record.
The anonymity shield
Privacy engineered into every step
Not a policy bolted on at the end. The separation between who you are and what your records say is built into how the system works.
The only thing that could connect a record back to a person is stored apart from every dataset we license.
What this means for you
The commitments behind the design
Researchers never receive your identity
Licensed datasets contain de-identified health information only. No names, no contact details, no direct identifiers.
We do not sell you to advertisers
Our business is licensing structured, de-identified data for health research. It is not advertising, and it is not resale of personal information.
The outcome
Protection and progress, at the same time
De-identification is what makes it possible to help health science without exposing the people who made it possible. Datasets that meet HIPAA de-identification standards can be studied openly, which is exactly what research into conditions that disproportionately affect our communities has been missing.
For the specific detail on what we collect, how long we keep it, and how to exercise your rights, read our privacy policy.